OC TALK RADIO

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Eleven people out of one hundred will be alive five years after their pancreatic cancer diagnosis. The five-year survival rate for pancreatic cancer patients has increased recently from a single digit number to 11%. Tori Larrick, Patient Services Manager ll with the Pancreatic Cancer Action Network recently shared with us why early detection and better treatment options are some of the reasons why we are seeing this increase.

This episode of Living Hope is dedicated to PanCAN’s Survivor Council and Survivor Council Alumni. The Survivor Council was formed to represent the voice of survivors and they are committed to ensuring that the survivor perspective is integrated into all that PanCAN does.

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Ken Parme, a husband, father, grandfather a man with many talents when asked how he wants to be remembered he replied very simply “as a kind man.” Ken is a very kind, friendly, talented man who I’ve had the pleasure of knowing for a number of years.  It wasn’t until he shared his journey with us that I realized how much we had in common in regards to our diagnosis.  In December 2012 Ken was diagnosed with an inoperable tumor.  The tumor was wrapped around his veins, and lying against his aorta.

Ken took good care of himself, ate right and was active. He was a power walker and one day on a walk with his wife Rebecca, he couldn’t keep up with her. Rebecca insisted he go see his doctor. Tests were done and Ken was told he was a diabetic and started on insulin immediately. After starting insulin, Ken still felt lousy, so his wife made an appointment with an endocrinologist. Ken, shares his journey starting with his diagnosis of an inoperable pancreatic cancer tumor, his treatment with chemotherapy, the use of the new Cyber-Knife, his eight years “stable status” and a book he and his wife wrote together. Ken and Rebecca Parme wrote a book “In The Gaze of The Divine, Life with Pancreatic Cancer.” from the patient/survivor and caregiver point of view. Available on Amazon.  Ken has also written a children’s book available on Amazon “The Adventures of Madde Mckinsey

This episode of Living Hope is dedicated to Ken’s wonderful, wife and Caregiver, Rebecca. We want to leave you with a quote from their book, “May we all get to the place where we can accept -let go- and focus on the blessing of the day.”

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Paul and I sat down and had a chat about the ways in which COVID has complicated people’s battle with pancreatic cancer.  The affects it had on the patient and their families. Being back in person at PurpleStride, how having a positive outlook can get you through the difficult times.  What we hope for the future of Living Hope and more!

#PurpleStrideOC #PurpleStride #PancreaticCancer #COVID

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Laurie Paolone went to lunch with friends.  Later when she wasn’t feeling well she thought she had food poisoning.  When the symptoms became worse she went to the Dr and was treated for an ulcer. It wasn’t until someone noticed she was jaundice (yellowing of skin/eyes) that she was told to go to the ER immediately and learned she had pancreatic cancer.   The first thing Laurie thought of was “oh my God, I can’t have my parents bury me.”  Laurie shares her inspirational journey through the roller coaster ride of diagnosis, the Whipple, chemotherapy, radiation, being cancer free to reoccurrences, only OC Talk Radio, Orange County’s only community radio station, live streamed from UCI Beall Applied Innovation Center at the Cove.

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This episode of Living Hope is a continuation of a pervious conversation about being a Caregiver with Stephanie Ruvalcaba Ho. What is a Caregiver? If you provide help to another person in need, you are a caregiver. Caregivers can be professional – hired through an agency or a family member stepping up.  Caregivers come in all different types – the one who takes care of all the medical needs, runs errands, meals, personal needs.  There is a lot to being a Caregiver, many challenges, roll coaster of emotions. Even with all these feelings there are some good things that can come out of this difficult situation. Listen as we have a very open and honest discussion here only on OC Talk Radio, Orange County’s only community radio station streaming live from UC I Beall Applied Innovation at the Cove.

This episode of Living Hope is dedicated to all Caregivers and thank them for their care, support and love during our journey.  I’d like to end with a quote from Former First Lady, Rosalynn Carter: “There are only four kinds of people in this world: those who have been caregivers, those who are currently caregivers, those who will be caregivers and those who will need caregivers. Caregiving is universal.”

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I can’t believe a year has come and gone! Who knew, for me the first episode I would go from “Executive Producer,” to actually becoming the host.  Looking back through our first year, so many amazing journeys, each one left me with wanting to learn more.  We shared so many emotions, laughter and tears but each one filled with love. Many of the journey’s may not have had the outcome we hoped for but we still found something positive, some strength we could take from every journey.  Join us on our weekly journey as we provide hope here only on OC Talk Radio Orange County’s only radio station live streaming from our station here at UCI Beall Innovation Center at the Cove

For Patient Services please contact the Pancreatic Cancer Action Network at

877-PAN 2-CAN

Share your journey by contacting us at octalkradio.net or paul@octalkradio.net

https://www.facebook.com/LivingHope2055

or email livinghopepc@outlook.com

Check out the Hirshberg Foundation for Pancreatic Cancer Research https://pancreatic.org/ for the recording of the 16th Annual Symposium that took place on April 23, 2022

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A family friend gave 14 year old Tori a purple journey to help her cope with her feelings after learning her father had been diagnosed with pancreatic cancer.  Ironically at that time neither realized purple is the awareness color for pancreatic cancer.  Tori felt her journal offered her a safe place to write about her journey and also used this journal not only to write about her feelings but to also keep track of her dads symptoms, treatments, medications, test results, anything to do with his journey.  Hear how this teenage girl helped co-facilitate a support group for other teenagers who had lost their parent and how her experience led her to where she is today.  Only on OC Talk Radio, Orange County’s only community radio station live streamed from UCI Beall Applied Innovation Center.

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PS We’re Back!  PanCAN Orange County Affiliate JB Jaso, joins us and we talk about PurpleStride Orange County!  Last time we had an in person PurpleStride was in 2019.  We’re so excited to be back!  We talk about the route, the new way to do the Path of Heroes and how you can get involved!

This episode of Living Hope is dedicated to all those who helped put Orange County PurpleStride together:  JB, Vic Luna, Rosa and Juan Velasco, Ross Swartz, Rick Pinson, Colleen LaSalle, Madison, Julia, Silvia, Stephannie, Angels staff, Media sponsor OC Talk Radio, Paul Roberts, Le Grand Marketing, Sprouts

JB surprised me with a dedication to my 20th year survivor-versary!

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In this episode of Living Hope we continue our conversation we started on March 24.  What to do when a loved one dies?  This is a subject no one wants to talk about but at some point it’s information that can be helpful.  If we can all set down and talk about what we want when we die it would be so helpful for those left behind.  What is a  Advanced Health Care Directive? Is one needed?  Who needs to be notified? What kind of service should we have?  Would a check list be beneficial? These are some of the topics we talked about. It can be a heavy subject but we did have some laughs along the way.  

“As long as you speak my name, I shall live forever”

This episode is dedicated to Lupe Romero, “Inhale life to the fullest”